Ticcing and Talking with Lu by Lucia Marchionatto


Tourette Canada welcomes kids, youth and parents/guardians to get in touch with us if you would like to share your experiences with us in a future blog post.

I developed TS around the age of 9, with my first tic being a vocal tic causing me to repeatedly clear my throat. At first, I did not know that I had TS. I was quite confused. All I knew was that I felt a constant need to clear my throat and no matter how many times I did it or how much force I would put into clearing my throat the urge would not go away. A couple of months later after seeing some doctors, I was diagnosed with Tourette.

I struggled quite a bit with my TS as an adolescent. I often felt very alone and misunderstood. At the age of 21 while residing in an all-women’s shelter, I met a woman who had moved here from a war-torn country where she had seen indescribable things. Yet, she was simply the most content person I’ve ever met. I remember wondering how she could be so happy after being through everything she had experienced and as we began to talk it all became very clear to me. This woman was the most thankful woman I knew! And that’s when I realized…

Anyone can be dealt a bad hand. It’s all about the attitude with which you deal with it!

Nobody’s life is one hundred percent perfect. We all go through things, bad days, hard times, the ups and downs of life. The important thing is to see the bad moments as a stepping stone, because that’s usually when we are learning the most. I have found that through the crazy adventures of my life it may be the good times I enjoyed, but the hard times that I learned from tremendously. For example, perhaps if I had not experienced being bullied as an adolescent, I would not have the strong desire that I have today to help others and be a voice for those in need. The rough times are what have shaped us into the amazing person we can be today. So the next time you’re going through a bad moment, instead of trying to think about how bad you feel, focus of how you could improve the situation next time and remember to keep smiling! Because in this crazy rollercoaster of life, when you fall down…you rise back up again.

—Lucia Marchionatto